The Scariest Day Of My Life - part 2
Posted: Friday, October 12, 2007
by Jon L. Wegner
This is the second installment of my three part series about the diagnosis of my multip
le sclerosis.
In January of 1991 I went to get my eyes checked at a Benson Optical. The optician gave me a different prescription. I thought this might solve my blurry vision when I ran problem. However, the first time I jogged my right eye again clouded up like it had done in the past. And just to make me mad it did it in the exact same place as before! You may question how I can remember this from 16 years ago but the diagnosis time is in my brain for the rest of my life! I was still having some tingling in my right arm and leg so I went to a chiropracter and he cracked my back. He thought that my sciatic nerve was pinched and that would take care of the tingling. It did but only for a week and then the tingling feelings came back to my right arm and leg. I was starting to go crazy wondering what the heck was wrong with me!
Around that time I read, heard on TV or a friend told me about multiple sclerosis. I also went to a Pearl Vision Center to have my eyes checked again. I wanted to see if the Benson optician knew what he was doing and had given me the right prescription. I told the Pearl guy about my blurry vision when I jogged. The Pearl optician checked my eyes and said it was the right prescription and I asked him if this could be MS. He said it could be and if the symptoms continue that I should see an ophthalmologist (doctor of the eyes). So I kept on jogging every day and my right eye kept on getting blurry at the very same location of my run.
It was turning to spring in Minnesota and everybody was getting outside. I decided to join a softball team. One night while I was at practice I was playing catch with another player. I had a very freaky thing happen to me. I would see the ball leave the other person's hand and then on the flight between us it disappeared. The ball would reappear seconds before hitting my glove! Wow! What the heck was this now! Now that was strange and my head started whirring again. A couple of days later I scheduled an appointment with an ophthalmologist and again he confirmed that the Benson and Pearl opticians were correct. I also asked him about mutiple sclerosis and if this could be that disease. Like the Pearl opticians he said it could be but I should see a neurologist to do some tests and get this figured out! He gave me the business card of a neurologist that he knew.
It was then that I decided to go to the library and get a book on multiple sclerosis. Sure enough some of the symptoms and problems I'd been experiencing for the past year and a half were in the book. My head was spinning as I thought to myself, what would I do if I had MS? I didn't sleep well for a week in anticipation of my appointment. It may seem like I was putting off all these appointments for a week but remember I was still running my carpet cleaning business. I was working days and nights and I suppose a part of me didn't want to find out what I thought was going to be bad news! So I scheduled an appointment with the neurologist and I went in and explained what had been happening to me. He then scheduled some tests for me.
The first test I had was what I call the strobe light test. I put on a skull cap connected to wires and the neurologist put a strobe light abut 6-12 inches from my face and turned it on. That test was to check my reaction to the light. I think it also measured how my optic nerve was reacting to the light. The second test was an electroencephalography (EEG) which records brain waves. Again I had the skull cap on with wires attached to it. It's used to detect the level of electrical activity in the brain. Your brain cells communicate by electrical impulses and an EEG measures and records these electrical impulses to detect anything abnormal.
The last test I took was a spinal tap. My neurologist had trouble finding the spinal fluid in my back. I think it was his first day ever doing it. There are different ways to get a sample of spinal fluid. Lumbar puncture, commonly called a spinal tap, is the most common method. The test is usually performed in the following manner:
- The patient must lay on his or her side, with the knees pulled up toward the chest, and the chin tucked downward. Sometimes the test is done with the person sitting up, but bent over.
- After the back is cleaned, the health care provider will inject a local numbing medicine (anesthetic) into the lower spine.
- A spinal needle is inserted, usually into the lower back area.
- Once the needle is properly positioned, spinal fluid pressure is measured, and fluid is collected.
- The needle is removed, the area is cleaned, and a bandage is placed over the needle site. The patient is often asked to lie down for a short time after the test.
He tried twice to find the fluid and was ready to send me to x-ray to find it when I told him to try one more time. On the third try he found the spinal fluid and was able to extract what he needed. Then I had to lay in the hospital bed for four hours. If you sit up too fast you will get severe headaches. The neurologist gave me some pain killers and sent me home where I rested for the remainder of the day! A spinal tap is normally 99.9% correct if a person has MS or not. Guess what? I passed the spinal tap test so it looked like I didn't have multiple sclerosis!
You need to remember that I wasn't married and I didn't have a steady girlfriend when I was going through all this! I was living by myself and didn't have any support system that I could talk to about this stuff! If I remember correctly my parents drove up to visit me while I was laying down. Even after the fours hours in the hospital I had to stay laying down for the rest of the day. My mind was wandering alot expecting the worst and making plans for my life if the results turned out to be MS. I'm not a weak person but I think it's natural for your mind to think the worst. At least mine did!
Other than my parents I didn't have anyone close to me to talk about all the things that were happening to my body. My head was thinking of all the bad stuff that could happen. Looking back I remember every new tingling sensation or feeling that I had brought on more questions. This eventually led me down a path of anxiety and panic attacks. I suffered with those most of the 90's and still periodically suffer from then now! The only difference now is that I know what it is and how to battle it! I might write another e-book about anxiety because I have so much to say about it.
Jon Wegner is a 49 year old resident of a small town close to Fargo, ND. He's lived there for four years after being lifelong Minnesotan. Jon now rides a three wheel electric scooter to get around. He can be seen scooting all over his little town. Jon's website, ebook, FREE newsletter and articles can be found at www.mymsbookandnewsletter.com Sign up for his FREE monthly newsletter and receive a FREE copy of his e-book, "I'll Run Again In Heaven". It normally sells for $14. Jon's articles can also be purchased at his website.
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Top-level comments on this article: (3 total)That was indeed very traumatic for you. These things can have very lasting effects. I know myself. My scariest day was giving birth to my first child. I was tortured by medical staff, not deliberately but I can't think of another way to describe what they they did to me. After the birth which had it's own complications and lots of medics running around, I started to bleed. I was left swimming literally in blood for 2hrs before a doctor checked me and found I had lost 2 pints of blood. I was rushed to theatre. No time for pain releif. I had four women pumelling my abdomen (breaing in mind I had just given birth) to manually force a huge blood clot out of there. The other end I had two speculums (bear in mind I had quite bad tears and had been stitched) and then the blood clot was dragged out bit by bit while I screamed. After this I was weak, and dizzy (they didn't give me a bood transfusion) and once fainted in a wheel chair only to wake up not knowing who I was or where I was. I had a catheter fitted, and they pulled it out fully inflated. This was excrutiating agony and why the nurse did not stop when I began to scream I don't know. These things do not hurt when pulled out deflated. I was not allowed sleep for 7 days as I had to feed my baby who had been in a special baby care unit for low blood sugar, because when she needed a night feed, the nurses would not feed her. I could not have an alarm clock as I was on a public ward so had to remain awake to check the times to feed her. When she was in the special unit I was having my blood pressure read every 30minutes through the day and night and they'd ask me what the last reading was as they had no notes. It was hell on earth. That particular hospital in the Uk is now on special measures as more than 'average' women died giving birth there. SO, I was one of the lucky ones! Anyway, Jon you are a brave man and sharing your experience can only benefit others. As for my scary day, it has made a few things that I have since had to bear much easier. I have as a result been told I am the most 'patient' uncomplaining patient! So, a silver lining of sorts I guess.CB, My story has nothing on yours. I couldn't believe the "punishment" you went through and had to endure on what is supposed to be one of the happiest days of your life! My heart goes out to you! My scariest day never had blood involved (that I know of) and yours did! I remember when my son was born and my now ex tore quite a bit. The doctor manage to sew her up and she was OK but still things like this make days traumatic. I can't believe the insensitivity of the hospital staff where you were! In America they would be slapped with a lawsuit quicker than greased lightening! Stay tuned for my Scariest Day - part #3 because it gets really interesting in my diagnosis. But there was no blood, only mental stuff! By the way how is your child that you went through your "experience" with doing? Jon
Jon, thanks for letting us in on this part of your life. I imagine it is kind of hard to see it all in writing, even if writing is usually therapeutic. I admire your courage.
Hi Jon, She's fine. Curiously they placed her in a crib next to me when they did the first 'operation' and I had to tell them to take her away. I didn't want her first memory of mommy to be hearing her screaming! She's fine though, thanks for asking. My second birthing experience was 'normal'. I look forward to hearing your next story, also the ones re anxiety that you plan to write. Meanwhile, I have an article you may relate to, called 'fear of death, who do you talk to?'. What you said here about not having anyone to tell your fears to reminded me of that as it is very similar.
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